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	<title>TC Awareness &#8211; Being Lila Blue</title>
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	<title>TC Awareness &#8211; Being Lila Blue</title>
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		<title>Dissonance</title>
		<link>https://beinglilablue.com/2024/02/10/dissonance/</link>
		
		<dc:creator><![CDATA[Lila Blue]]></dc:creator>
		<pubDate>Sat, 10 Feb 2024 20:12:00 +0000</pubDate>
				<category><![CDATA[Drops of Time]]></category>
		<category><![CDATA[Children]]></category>
		<category><![CDATA[Death]]></category>
		<category><![CDATA[Loss]]></category>
		<category><![CDATA[Love]]></category>
		<category><![CDATA[Pain]]></category>
		<category><![CDATA[TC Awareness]]></category>
		<category><![CDATA[Testicular Cancer]]></category>
		<guid isPermaLink="false">https://beinglilablue.com/?p=495</guid>

					<description><![CDATA[I know it&#8217;s a dissonance but when the days are calm, and my little universe [&#8230;]]]></description>
										<content:encoded><![CDATA[
<p>I know it&#8217;s a dissonance but when the days are calm, and my little universe seems in order, the pain of Ro being amputated from our lives feels even more acute. GASP: 8 months without my baby!</p>



<p>The text below is from another mother who also lost her son to Testicular Cancer and since then has been relentless in creating TC Awareness. I use my pain to expand her voice and TC awareness in memory of our kids!</p>



<p>&#8220;Who would have thought that a painless testicular lump could be <a></a>cancerous and spread throughout the body?? Certainly not us. Not in a million years would we have thought this could happen in our family. Not us, not cancer. Why weren’t there educational materials at the pediatric office? We should have been made aware about the most common cancer in young men ages 15-44 and the importance of monthly self exams?? When detected early, testicular cancer has over a 95% cure rate. Awareness and early detection are key!&#8221; <a href="https://www.facebook.com/kimjonestcaf?__cft__[0]=AZVPu4QRvEsNPuHcgCrP4B0LfxyX6TPvCv0fDXXmgWrwmsdEEUxUPIyHIyh73cinDky9yuSgCfijDmn3VLcw8QotVGwml3oqoZA4YO7bWpRsp7-8yUOgNCs1EuXT9eT53WkOqhD7GnIwDrUElnEOy5pckDPwh3T1X9mHZ6dJWrDGQA&amp;__tn__=-]K-R">Kim Jones</a></p>



<figure class="wp-block-embed"><div class="wp-block-embed__wrapper">
https://testicularcancerawarenessfoundation.org
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			</item>
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		<title>Dust in the Wind</title>
		<link>https://beinglilablue.com/2024/01/10/dust-in-the-wind/</link>
		
		<dc:creator><![CDATA[Lila Blue]]></dc:creator>
		<pubDate>Wed, 10 Jan 2024 19:12:00 +0000</pubDate>
				<category><![CDATA[Drops of Time]]></category>
		<category><![CDATA[Children]]></category>
		<category><![CDATA[Death]]></category>
		<category><![CDATA[Dust in the Wind]]></category>
		<category><![CDATA[Loss]]></category>
		<category><![CDATA[Love]]></category>
		<category><![CDATA[Pain]]></category>
		<category><![CDATA[TC Awareness]]></category>
		<category><![CDATA[Testicular Cancer]]></category>
		<guid isPermaLink="false">https://beinglilablue.com/?p=498</guid>

					<description><![CDATA[Update: His ashes were spread on 1/14/24 at Governor&#8217;s Island in NYC where his wife [&#8230;]]]></description>
										<content:encoded><![CDATA[
<p>Update: His ashes were spread on 1/14/24 at Governor&#8217;s Island in NYC where his wife dedicated a bench to him.</p>



<p>I was not there. I did not have the emotional strenght to let him go but she needed the closure. He is just dust in the wind now. <img decoding="async" height="16" width="16" alt="&#x1f494;" src="https://static.xx.fbcdn.net/images/emoji.php/v9/t86/2/16/1f494.png"></p>



<p>&#8212;-</p>



<p>A friend keeps reminding me we are just star dust. Poetic, if not the only reality.</p>



<p><a href="https://www.facebook.com/hashtag/testicularcancerawareness?__eep__=6&amp;__cft__[0]=AZXRT76zyKnINY_vdFXTC_QFSFAnpjVuzSLbI89o_LdDfgt8S5gsb6GN2Sj6aK7ztSXNq0lKvL7cMo4OyizjwoslbvRCXF07KcodqJPsVfztwNkX3HBA6p6H7_WZE1SG4KwLyM4U5zWfXsD76ujW5dEXbQHSJyKUjG8INnBltdMYYg&amp;__tn__=*NK-R">#testicularcancerawareness</a></p>



<p><a href="https://www.facebook.com/hashtag/vilomahmothers?__eep__=6&amp;__cft__[0]=AZXRT76zyKnINY_vdFXTC_QFSFAnpjVuzSLbI89o_LdDfgt8S5gsb6GN2Sj6aK7ztSXNq0lKvL7cMo4OyizjwoslbvRCXF07KcodqJPsVfztwNkX3HBA6p6H7_WZE1SG4KwLyM4U5zWfXsD76ujW5dEXbQHSJyKUjG8INnBltdMYYg&amp;__tn__=*NK-R">#vilomahmothers</a></p>



<p><a href="https://www.facebook.com/hashtag/imissmyson?__eep__=6&amp;__cft__[0]=AZXRT76zyKnINY_vdFXTC_QFSFAnpjVuzSLbI89o_LdDfgt8S5gsb6GN2Sj6aK7ztSXNq0lKvL7cMo4OyizjwoslbvRCXF07KcodqJPsVfztwNkX3HBA6p6H7_WZE1SG4KwLyM4U5zWfXsD76ujW5dEXbQHSJyKUjG8INnBltdMYYg&amp;__tn__=*NK-R">#imissmyson</a></p>



<p><a href="https://www.facebook.com/hashtag/claudiajacquesmc?__eep__=6&amp;__cft__[0]=AZXRT76zyKnINY_vdFXTC_QFSFAnpjVuzSLbI89o_LdDfgt8S5gsb6GN2Sj6aK7ztSXNq0lKvL7cMo4OyizjwoslbvRCXF07KcodqJPsVfztwNkX3HBA6p6H7_WZE1SG4KwLyM4U5zWfXsD76ujW5dEXbQHSJyKUjG8INnBltdMYYg&amp;__tn__=*NK-R">#claudiajacquesmc</a></p>



<figure class="wp-block-embed is-type-video is-provider-tiktok wp-block-embed-tiktok"><div class="wp-block-embed__wrapper">
<blockquote class="tiktok-embed" cite="https://www.tiktok.com/@craujax/video/7322518033728097578" data-video-id="7322518033728097578" data-embed-from="oembed" style="max-width: 605px;min-width: 325px;" > <section> <a target="_blank" title="@craujax" href="https://www.tiktok.com/@craujax?refer=embed">@craujax</a> <p>A friend keeps reminding me that we are just star dust. Poetic when not the only reality. <a title="testicularcancerawareness" target="_blank" href="https://www.tiktok.com/tag/testicularcancerawareness?refer=embed">#testicularcancerawareness</a>  <a title="vilomahmothers" target="_blank" href="https://www.tiktok.com/tag/vilomahmothers?refer=embed">#vilomahmothers</a>  <a title="imissmyson" target="_blank" href="https://www.tiktok.com/tag/imissmyson?refer=embed">#imissmyson</a>  <a title="claudiajacquesmc" target="_blank" href="https://www.tiktok.com/tag/claudiajacquesmc?refer=embed">#claudiajacquesmc</a> </p> <a target="_blank" title="♬ Dust In The Wind - Legendas Music&#x1f3b6;" href="https://www.tiktok.com/music/Dust-In-The-Wind-6941165313203440389?refer=embed">♬ Dust In The Wind &#8211; Legendas Music<img src="https://s.w.org/images/core/emoji/16.0.1/72x72/1f3b6.png" alt="🎶" class="wp-smiley" style="height: 1em; max-height: 1em;" /></a> </section> </blockquote> <script async src="https://www.tiktok.com/embed.js"></script>
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			</item>
		<item>
		<title>Touch Yourself!</title>
		<link>https://beinglilablue.com/2023/10/20/touch-yourself/</link>
		
		<dc:creator><![CDATA[Lila Blue]]></dc:creator>
		<pubDate>Fri, 20 Oct 2023 22:05:00 +0000</pubDate>
				<category><![CDATA[Drops of Time]]></category>
		<category><![CDATA[Life]]></category>
		<category><![CDATA[Love]]></category>
		<category><![CDATA[TC Awareness]]></category>
		<category><![CDATA[Testicular Cancer]]></category>
		<guid isPermaLink="false">https://beinglilablue.com/?p=541</guid>

					<description><![CDATA[Today was rough. It is strange how little control of my feelings I have. I [&#8230;]]]></description>
										<content:encoded><![CDATA[
<p>Today was rough. It is strange how little control of my feelings I have. I know I was never good at controlling them but now it&#8217;s much worst.</p>



<p>Actually, the feeling that is new and harder to control is sadness. Joy, happiness and even anger I am very much acquaint with, but not sadness. This deep, sneaky pain in the heart that comes from nowhere and in the most weird places and situations.</p>



<p>Today I was sitting at the dentist reception area waiting to have a root canal treatment <a></a>when this young mother came in accompanied by her young teen son. They were exchanging cell phone memes and laughing between themselves. Their little loving and fun exchange was so familiar to me!</p>



<p>I too shared that with my boys. And 20 years ago I was there, in the same waiting room, having fun with my teen boys. At this point, the tears started to come down and I could not stop. I was sobbing.</p>



<p>All I managed to do was ask the mother if I could give her something and I gave her a Testicular Cancer Awareness &#8220;Touch Yourself&#8221; card. The thought of that sweet mother loosing her boy was unbearable to me. Made me sob even harder. I hid in the bathroom after.</p>



<p>You see, I went to the dentist without my psychiatric service dog, Leroy, and I was there sobbing my life away. I&#8217;m still so raw! I can&#8217;t go out alone. Leroy would have refocus my attention, and taken me outside before I got so raw. I came out of the bathroom.</p>



<p>The receptionists were thinking I was in tears in fear of the root canal treatment but I didn&#8217;t bother to correct them. I&#8217;m fine with my mental health being off, admitting sadness is a lot harder to confront.</p>



<p>I managed to compose myself. Although while at the dentist chair, with a lot of local anesthesia and drills in mouth I could not stop thinking of the brutality of the dental work I was having. This lead me to remember that my poor son endured brain and body surgeries and all sorts of the most brutal and invasive treatments just to stay with us a little bit longer. As my brain was scanning through my son&#8217;s ordeals, I seemed to be making different faces and noises because the dentist asked me several times if I was in pain.</p>



<p>Yes, I was in excruciating pain but not from the treatment but from the thoughts I was having. Again, sad, sad feelings and painful memories. I guess the dentist being around Roger&#8217;s age didn&#8217;t help either.</p>



<p>After the dentist finished, I shared with him what was going on with me and why the faces and noises. I also gave him some &#8220;Touch Yourself&#8221; cards. A few minutes later he came back to tell me that he was tearing up and commiserated with me. So there I was sharing sadness with this kind young human. And now, again here, but if I don&#8217;t put it out, I feel I will stop breathing.</p>



<p>I may also be arrested for handing out cards to strangers suggesting boys and young men should touch themselves.</p>



<figure class="wp-block-image size-full"><img fetchpriority="high" decoding="async" width="750" height="750" src="https://beinglilablue.com/wp-content/uploads/2024/02/Umar-TSEUpdated2024.jpg" alt="" class="wp-image-543" srcset="https://beinglilablue.com/wp-content/uploads/2024/02/Umar-TSEUpdated2024.jpg 750w, https://beinglilablue.com/wp-content/uploads/2024/02/Umar-TSEUpdated2024-300x300.jpg 300w, https://beinglilablue.com/wp-content/uploads/2024/02/Umar-TSEUpdated2024-150x150.jpg 150w" sizes="(max-width: 750px) 100vw, 750px" /></figure>



<p><a href="https://www.testicularcancerawarenessfoundation.org/">https://www.testicularcancerawarenessfoundation.org/</a></p>
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